FATIGUE:

Definition

By Mayo Clinic staff Nearly everyone struggles with being overtired or overworked from time to time. Such instances of temporary fatigue usually have an identifiable cause and a likely remedy.
Chronic fatigue, on the other hand, lasts longer and is more profound. It's a nearly constant state of weariness that develops over time and diminishes your energy and mental capacity. Fatigue at this level impacts your emotional and psychological well-being, too.
Fatigue isn't the same thing as sleepiness, although it's often accompanied by a desire to sleep — and a lack of motivation to do anything else.
In some cases, fatigue is a symptom of an underlying medical problem that requires medical treatment. Most of the time, however, fatigue can be traced to one or more of your habits or routines. Chances are you know what's causing your fatigue. And with a few simple lifestyle changes, it's likely that you have the power to put the vitality back in your life.

This is something I've been dealing with lately and unfortunately this is when people seem to assume I'm lazy...  It hurts when people think this way, and in exchange it adds even more stress to my life which makes the fatigue worse.  I wish there was something I could do to get rid of the fatigue.  I don't have it all the time but when it hits, it puts me down for the count.  Yesterday there were things that I HAD to do, and when I was finished with everything I was totally exhausted.  Now this morning, I have zero energy...  

Well today is infusion day.  Time to get hooked up to an IV and get pumped with Actemra.  My funds with Healthwell will be depleted after this infusion.  I'm waiting to hear back about other funding options.  If I don't get any; no more infusions for me.  What kind of healthcare system do we have???  It's a constant, jumping through hoops, hoping to qualify for something, dealing with insurance companies, pharmacies, doctors, pharmaceutical companies and more.  

I will write another post later today.  I'm going to try and get a few more zzzz's before my appointment.  I'll update everyone on what's been going on lately...  Some exciting things!